gottawonder: (Default)
[personal profile] gottawonder
Today I am grateful for:

Good weather. Still kind of dry, the rain we do get is a few drops here, a few drops there. Hot and sunny.

Sister E's MIL did pass away, and now they are planning the service and so on. It's sad, but this is a death of a woman who lived a long life, 99 years.

Spoke with Trainwreck, who somehow is being released from the hospital tomorrow. She sounded good on the phone, sober at least. She says she's quit now, but who knows. She says they didn't find anything to worry about with all of the tests, she's eating and not vomiting, they pumped her full of electrolytes, and now diuretics.

She's going to spend a few days with Sister N, which is kind of a meh choice. Sister N is usually a painkiller addict, sleeps so hard no one can wake her up, and hard to say what she would be able to do to help Trainwreck, other than call 911. Oh well.

I established in speaking with Trainwreck that all three of her sons have been listed as healthcare proxy in the event that she cannot act for herself, it's apparently that two of the three sons must be present to make a decision. Weird.

I checked with one of her sons, and they are aware of that. Up until recently they did not KNOW that they were her healthcare proxies.

Trainwreck thanked me for getting her sons to come get her and take her to the hospital, and I said "there were at least four other people who tried to get you to the hospital first, and you told all of them to go away, what's up with that?" She says she was so out of her mind that she doesn't remember anything, and was extremely confused and not clearly thinking at all.

So, apparently you could call someone an ambulance, and if a person refuses care, the ambulance drivers can't take her, but what about in situations like this where she is clearly very ill and not in her right mind? None of this makes sense, because they MUST sometimes deal with people who are clearly not in their right mind who desperately need care...?

This is why it is so important to know her healthcare proxies.

I spent some time reflecting on how useless everyone was in this situation. Several people tried to get her to go to the hospital, but what did they do, just whisper something to her through her door? No one seems to have even spoken to her sons with any real urgency, just "she's pretty sick right now", which isn't going to do anything.

I literally said to one of her sons "she's going to f*cking be dead in about a day if you don't do something", and that son said to me today when I talked to him that the doctors said she would have died if they hadn't brought her in that night.

What if I hadn't tried to talk to Trainwreck and got her friend John? What if I hadn't bothered to call her son, or if I had spoken less forcefully? She'd just be dead. What if I didn't even make any calls that day, and figured I'd just try tomorrow?

Why was I the only one actually thinking she might really die? Why is everyone so useless, and unable to act effectively?

I went to town for groceries, and I am very grateful for being able to do that.

I wanted to go for a walk but a thunderstorm came along, so when I got home we just had supper and watched some "Justified".

It feels like an incomplete day, because I just didn't really do anything.

Date: 2024-08-20 07:01 am (UTC)
ratunderpaper: pink boy! (Default)
From: [personal profile] ratunderpaper
Hopefully TW's next of kin are aware of whatever is wrong with her and can look for dangerous symptoms the next time they occur.

Is the father of the three sons aware of the situation?

Date: 2024-08-22 04:09 am (UTC)
ratunderpaper: pink boy! (Default)
From: [personal profile] ratunderpaper
That's pretty complicated for TW. It is a shame that neither of the three fathers can manage a cordial relationship with her for the family's sake. (Though I am aware that it's a somewhat common circumstance and often no-one's fault.)

Date: 2024-08-23 07:05 am (UTC)
ratunderpaper: pink boy! (Default)
From: [personal profile] ratunderpaper
If one is teetering on the edge of life and death, I can promise you that any gesture of rescue is welcomed - with or without dignity.

I remember ICU nurses talking about the kindness offered by exes when their spouses' lives were in danger. (I'm not talking about a rekindling sort of kindness, but a human decency sort of kindness.)

I was pleased to welcome any or all old or ex-pals to visit when I was there.

Date: 2024-08-24 06:16 am (UTC)
ratunderpaper: pink boy! (Default)
From: [personal profile] ratunderpaper
Totally understandable if people are not on good terms. I can't see the point of forgiving doinks just because of illness or calamity. Some doinks are irredeemable and don't deserve reconciliation of any sort.

What I really would like if in hospital again:

1. Schubert's piano sonatas played quietly - I do not care who arranges this, but NO DOINKS ALLOWED
2. A nice Hockney, Manet, Degas or Nara poster hung somewhere where I can see it (I did think of this twelve years ago, but expected to be back home in two days, not a week)
3. Mungo

Date: 2024-08-21 05:44 am (UTC)
cf2princessawnw: (Default)
From: [personal profile] cf2princessawnw
I hope you can be gentle with yourself as you process a hard day and situation. I'm sure it's such a relief and gratitude that she's out of crisis and alive. But, I'm sorry that that all happened to you too. To have a situation like that happen which kind of numbs you out of your own life for a short while. To realize life and death matters or being handled by a system of people that are incompetent and unaware. As I said before, when situations like that have happened here (not trying to compare but relating in anyway I can), for me at least it's just such a weird Twilight Zone situation. Like how is everyone going about the daily things of life for which the whole purpose is to stay alive and decrease the potential for sorrow and stress.... how is everybody just doing that so much that they're in a hamster wheel of not even paying attention to the dying hamster right outside the wheel. I know there are varying reasons for each of our circumstances, and it's something you could think about for months on end. I'm sorry it took time away from you enough that you felt it that way, but I hope that you were able to process what you needed and can move toward a more complete feeling day tomorrow.

Sending a hug
Edited Date: 2024-08-21 05:46 am (UTC)

Date: 2024-08-21 11:31 am (UTC)
cf2princessawnw: (Default)
From: [personal profile] cf2princessawnw
I'm just glad that you're not in that daily. Because it starts to mess with you and warp your own understanding much in the way that it impacted you for those days. For me here I start to see a world that lives like that. And at first it blows my mind, then it shocks me, then it just kind of weirdly numbs you even though you're still shocked, and then after years of it it starts to really mess with you. I don't know if I'm back here on this and I might need years to decide one way or the other, but I start to believe that it's not how much good you do in a relationship, it's how much bad is there. My family has done amazing heartfelt tear-jerking things for me in the past, but it's the level of "insanity producing mind exploding with pain as it's destroyed by trying to understand".... What can't be understood. But someone can be screaming and crying in pain in one room and other people calmly walk by and completely ignore it. And yet they have good standings in the community and with their friends.
I really deeply do worry how many relationships I put up with of different kinds because of having to live through all of that and with all of that on my closest ones with family. All I can hope is that I get the hell out of here, and that by some last miracle it can get out of me wherever I go next. And in a way that keeps me separate from these people forever. Yes there is forgiveness. But even with things with L. In the last few years, I would have never wanted to forgive him if God hadn't told me that was the right thing that I needed to do for me. I feel like I'm past and done was forgiving and forgiving and forgiving people for just obliterating or tossing aside is completely useless what should be valued. Oh I'm valuable and I'm valuable to them. And they are all varying levels of bad behaviors, and some may be able to actually be handled with boundaries. But all of that to say I just know that there's a part of me that's gotten oblivious to the threats around. I'm aware they're there, I can see them better than most people, but there's something that's just not right inside of me anymore because I've tried and tried and tried and tried with the very cells of my bones to change this and I can't get. There's a part of me losing commitment to the motivation and it's a new experience I'm sure I'll get through somehow.

All that to say, no it's not easy here so to speak that you're far away from it all, in some ways it's probably even harder at times. Because of all the ifs and if onlys you were there. But you were still able to make the difference that somebody on Earth needed to make, and even from a distance. Any closer and it would have all been dumped on you, and I'm not sure that you're feeling this way or not. If you're not just disregard it. But as an online friend far away looking in, I'm just really glad that you have your world and your home separate from all of that. Yes you're still connected to some level, but it's not your life and clearly from what some of your other sisters have chosen for theirs and then gotten stuck in, it could have been. So I'm really really grateful for you that it isn't. And I hope that the next time you hear your family in your head doubting something good you did for yourself, been in a kind but very real way you can remind yourself of just that. Hope that came out right. Been up all night unable to sleep for some reason.

Date: 2024-08-23 12:55 am (UTC)
cf2princessawnw: (Default)
From: [personal profile] cf2princessawnw
I'll try to read more when I'm able but I'll respond to this much to say there's a crucial difference between being burned out and having been burned. Clearly you've been burned and so has most of your family that have also consequently been burned out.

"I am not asking this to be cruel, but to understand. If someone could ease your pain in a way that it straightforward, and you do stop screaming afterwards, likely people help, yes?" I don't really want to recount it but no. They would not likely help at all if they were related to me unless they were the kiddos. In a true medical emergency I do not genuinely know if B1 would do a thing. I would have to depend on EMS to break down the door. Mom, it would depend on the moment. I might actually have to defend and explain what I was calling for emergency help And requesting that she would open the door for them So that her door wasn't damaged. other days she would be Off the rails upset that I would even say such a thing could happen in our home that not only would someone not provide first aid when they were trained in it, but that there would even be a squabble over opening the door for emergency care to come. OK enough thinking about that. not something I want to recount, but things that I've been through similarly enough here to know the unfortunate veracity of my making such assertions. I don't say those lightly, And I hate saying it about my own family. Why I feel shame for their actions Or inactions, who knows.

As to why caregivers In society in general are paid because family would burnout, I can understand that to some level. And to be clear, every time I have thought or told anybody about linking my life up with theirs even by being a friend that lived in the same city, I always always mandate that I would have separate independence. Moving out to Dr B T's is a practical test of that. Shoot I've even warned the doctors that I don't want them to burnout On my case. Like medical actual doctors that are fully aware of how complex this is and are still telling me to come there. I'm still warning THEM! My situation is one where I have been warped to not ask for help because I've been rejected so much for simple things. And I don't want to remember that and what it does to you to have to live like that, especially with the different history i've had with these very people.

ALso, keep in mind that old BFF no longer has any caregivers and it's up to her and her husband totally. she's in an electric wheelchair, cannot even stand, and is on a feeding tube. RC is full time caregiver now to SC, Who is basically wheelchair bound. my point is these people can do less than I can, and their family are full time caregivers to them without complaining about burnout. I can think of other family setups That are similar. no one's complaining, instead they work together as a team to do the best they can so that someone ISN'T burnt out. it reserves their relationship and each person's life. Nobody is ignored. No need to met at the expense of someone else's chance to live life. The difference with me is that my family has burned me. I understand that they're burned out and I've explained before why due to my father's situation Traumatizing them and then refusing to get counseling for it, but it is really just hurtful and humiliating when I have to explain to government agencies that no I don't have family support or a backup plan. That's a horrible thing to have to admit and say and how it makes me feel. Anyway. I realize my situation is different than most people's. My brothers were never good caregivers (Not saying that judgmentally just its was never there gift by any means), but they used to at least be my brothers and friends. My family did not treat me the way they are now Until after my father's situation. He was a narcissist, And not The way everyone bandies that word about, But in actual true narcissist. so couple that with his health problems later in life And wrong cultural and religious beliefs Plus my brothers being horrible caregivers, and it messed them up.

only because they're not willing to resolve those emotional and psychological issues of trauma, they act them out toward me. Anyway don't want to think about it more :) hope that answers enough. You know now that's freaking me out as to what's gonna happen with my mom when I leave. Okay should have gone to bed lol but that was my choice to answer this now. I take full responsibility for that! lol Maybe, maybe I can talk to the two of my siblings and tell them that while they may disagree, I can speak in a way that they can't from experience. And that maybe I'm wrong and I pray that maybe I am, but to please look out for mom because once I leave, if there is any chance that B1 has been acting out behaviors toward me that were meant toward dad, she's the 1 that will get it and there won't be anybody else around living in the house and she's not the kind to talk about it. She was faithful to my dad for 40 years of bad treatment so. But she is a fullgrown woman and I need to let go. She wants him in her life more than me And that is clear. yet another painful reality but Better than delusion. Anyway, I can't be the whipping girl forever in this family.

Last thing. and I really need to shut down thinking on this for tonight. I know you're wanting to understand and I know you're dealing with so much there that you can't possibly remember every massive entry i've written about it already explaining all the nuances! LOL! but it is hard to recount. So last thing, Deep down I am terrified of opening up to joining my life with anybody else's because of that very thing. i've been treated so badly by the people I poured my life into, And I've seen friends be horrified and shocked at how I'm treated. more than one has said years ago when we were still closer as a family, that it was so awkward and shocking for them that I needed something so simple and nobody helped me And it was like they all were just blind to my existence. it's abnormal how they behave. And the worst part is that now they blame me for it because they can't handle their own guilt. It makes you question your own worth And even asking or having a right to ask or worse having the right to have a need. That's what it really is it makes you question your right to even have a need even if it's a basic need that your survival depends on. So I'm the last person on the planet That will ever put someone in a knowing position of burnout. But I'm also being more judicious in who I link up with as to whether they know their own personal boundaries and just really know themselves. So few people actually know themselves! So few people are willing to face who they really are. every time someone overextends it comes back to bite me. I don't want that. and I've actually been in situations where I've done without, because I just don't want to deal with it. I can't handle getting rejected one more time for something so basic a stranger would help you. and yes things a stranger would help you with repeatedly unless They were psychologically or emotionally damaged. Anyway. Sorry if it's not answering everything but that's probably all I can handle right now. Sending you a hug

What you're going through is a horrible situation and difficult in every way. I can't imagine what you or my friend AY go through literally trying to save the lives of siblings who are bent on self destruction partly due to their mental illnesses coupled with just bad choices. You're right in that it absolutely does something to you. and I hope you get the support that you need. I'm not saying that you're there or you need it, but in AY's Case it put her whole family in counseling. So take care of yourself. even from a distance this is really heavy.💖

Edited Date: 2024-08-23 12:57 am (UTC)

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